Could you have brain fog? Help us understand it better!

Coeliac disease is an autoimmune condition involving an abnormal reaction to the protein gluten, causing both gastrointestinal (e.g., abdominal pain, diarrhoea) and extraintestinal (e.g., anaemia, osteoporosis) symptoms.

Along with the physical symptoms of coeliac disease, individuals living with coeliac disease report experiencing ‘brain fog’. Despite brain fog being a well acknowledged experience in the coeliac community, its definition and a validated measure of this experience have yet to be developed. The development of a validated measure will provide clinicians and patients with an important measure to evaluate the efficacy of treatments for coeliac disease.

What is the purpose of the study?

The purpose of this study is to gain knowledge about brain fog, including its severity and its relationship to gastrointestinal symptoms, psychological distress, quality of life, and cognitive processes including decision making. Your participation in this research will provide a significant contribution to the current knowledge relating to brain fog and help us to develop a new scale that will assess the severity and impact of brain fog.

Study investigators:

Associate Professor Simon Knowles (Principal Investigator and Clinical Psychologist), Dr Pragalathan Apputhurai (Lecturer in Statistics), Dr Benedict Williams (Senior Lecturer), Mr Stephan Moller (Research assistant) and Associate Professor Jason Tye-Din (Consultant Gastroenterologist, Walter and Eliza Hall Institute of Medical Research).

If you would like to know more and/or participate, please click HERE.